East Genomics

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Open patient surveys

On this page you can find opportunities to provide feedback on your experiences of various aspects of genetic testing and appointments.

Genomics Health Hub for patients, the public and communities

The NHS North Thames Genomics Medicine Service is looking to collaborate with local communities to create an easy-to-use online Genomics Health Hub. One major aim of the Hub is to make information about genomics and health clearer, fairer, and easier to access, so that communities can have the opportunity to benefit from advances in genomic healthcare.

Members of the public are invited to complete a short survey asking for their thoughts on different explanations of genomics and genetics. Your responses will help shape the final design of the hub.

Please take a few minutes to share your views here (no prior knowledge of genomics is required).

People's experience of receiving genetic test results

Have you received a genetic test result? If so we invite you to complete a short survey to share your experience and help us improve how genetic results are communicated to patients and families.

All responses will be anonymous. We will also invite a small number of participants to take part in follow up conversations about their experience.

You can tell us about your experience of receiving genetic test results here: Patient Survey: Improving the delivery of genetic results (opens in a new tab).