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Paraganglioma and Phaeochromocytoma - Genetic testing for inherited causes (R223)

Paragangliomas are tumours (growths), that come from special nerve cells that make adrenaline and similar hormones. When these growths form in the adrenal glands, they are called phaeochromocytomas.

The patient information booklet on this page is for people who have been offered a test to look for inherited changes (described as variants) in a group of genes that may explain why they have developed a paraganglioma or phaeochromocytoma.

Non-urgent advice: Local printing instructions

To print this resource locally, you will need to do the following:

  1. 'Page Sizing and Handling' - select the 'booklet' option.
  2. Choose Both sides if your printer does automatic double-sided (duplex) printing. Choose Front side only (print, flip, and reinsert) if it does not.
  3. Sheets from/to: Leave on All.
  4. Binding: Set to Left.
  5. Check the preview to the right to ensure everything looks correct, then click Print.
  6. If your printer does not print on both sides (i.e. duplex) you should get a prompt to re-insert the pages to begin printing on the reverse side. Ensure they are the correct orientation so that pages do not appear upside down.

For any queries relating to printing or local Trust use of this leaflet please contact Ian Kingsbury, Communications Lead: i.kingsbury@nhs.net