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United against prostate cancer

This project aims to improve the prostate cancer pathway and support available for patients. It will tackle disparities and provide equitable access to prostate services.

Led by the University Hospitals of Leicester (UHL) the ‘United Against Prostate Cancer’ project team includes representatives from a number of local and national clinical, scientific and community stakeholder groups.

This work is part of a national pilot project which has a focus on establishing genetic testing of prostate tumour tissue samples to help identify the causes of this disease in patients. This could be useful in planning their treatment or determining if their relatives could also be at an increased risk of breast, ovarian or prostate cancer.

From April 2022 we aim to offer testing across the whole region for:

  • all affected men under 50 years of age
  • those under 60 years of age with a family history
  • those under 70 years of age of African/African Caribbean ancestry with metastatic disease (see infographic).
United against prostate
Ambition for genetic testing in men with prostate cancer

An initial batch of samples were sent to Cambridge (CUH) for testing (including positive controls) and the results have been returned, proving that the technology works.

In addition, the Leicester laboratory is working to streamline the process of requesting the molecular diagnostics for this project going forward.

A specialist nurse will start with the team later this month to review the patient pathway further, particularly with regard to the referral process for internal and external cases. She will also be establishing a specialist clinic and support across the region.

Soon the team will advertise for peer patient champions to help raise awareness of prostate cancer. They will encourage peers to take part in genetic testing of their tumour if they are diagnosed and support them and their families through their cancer journey.