On this page you will find resources and outputs developed by our Cystic Renal Disease project.
Infographics/posters
Please note, these resources were produced by NHS East Genomics drawing on input from Renal clinicians and PKD patients, and are based on national guidance.
You can either download and print these resources direct from this page or, if you require a version in your own Trust's branding (i..e your Trust logo) please contact us using the details at the bottom of this page. Before doing so you may wish to consider seeking approval via your own Trust governance routes.
The minimum recommended size for the infographic posters is A3. Please discuss with your Trust Communications Team if you wish to have copies printed for your service.
Rebranding queries
If you would like to discuss the production of versions of the above posters with your own NHS Trust branding please contact ian.kingsbury@nuh.nhs.uk
Patient Story
Watch Hina and Moaeed's story on how polycystic renal disease has effected their family
Link: https://youtu.be/vDJjx2EEB5I?si=fWTrxQSeE6ua003Y
You can also read a web article of Hina and Moaeed's story here.
Coming soon...PKD Clinical Pathway
We have developed a Cystic Renal Disease Clinical Pathway as part of the national Genomics Education Programme Clinical Pathway Initiative (opens in a new tab). Once it has been approved we will add it to this page.